Hello readers!
I spoke with the leader of Hydrocephalus support groups across America - and it IS official! I'll be working along side 2 other extremely talented ladies Nicky, and Jenna, for our support group!
Nicky had been "in charge" of the original Pittsburgh Support Group which unfortunately, NOT because of her, just never took off the way the 3 of us hoped.. So I guess, HOPING that changing the name would draw in more people, the "small town people" who are intimidated by a 'Pittsburgh group' is what our goal for now would be I guess! Nicky has a 4yr old son who also suffers from Hydrocephalus.
Jenna is another brilliant lady I met not long ago here on the wonderful internet :) She's only a county away from me, and has a 2yr old son ALSO with Hydrocephalus. She has MANY great ideas & I can't wait to get down & really start planning an actual MEETING with theese ladies, but FIRST we need YOU - the readers to spread the word! ;D
Any and all that join our group and/or follow our page, feel free to post YOUR (or your loved ones) Hydrocephalus and/or SpinaBifida Story in the comment box, and I'll get it copied & pasted as a post for ALL of the readers. (unless you tell me to do otherwise!)
So this is where we stand for now - please help us get the word out as we're nearing Halloween! Today being the 23rd - we're getting close!
What are YOUR children going to be for Halloween??
My 7yr old wants to be spiderman for the THIRD year in a row LOL! And Rowie, my dear daughter is going to be a lil Lion, but It's doubtful that I'll be taking her Trick-or-Treating just because of the cold weather.. We BELIEVE she has a weakened immune system because she gets sick SOO very easily.. so we never risk doing ANYTHING that could get her sick.. because ALSO, probably the odds of every 8 out of 10 times she gets sick, she takes a seizure.. and no one wants that!! :( Thats why her trick-or-treating is still .."up in the air" I guess you'd say! lol :)
We'll be keeping everyone posted!
Have a gr8 weekend!
Andrea
( Nicky & Jenna are here in spirit ;D )
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Feel free to post your own "Personal Story" in the comment box and I'll copy and paste any "Stories" into a post for all to read so others can see that they are not alone. Thank you :)