Well we're nearing the end of 2009 now that Christmas has passed..
I wanted to mention some of the great things that have happened in 2009 in the world of Hydrocephalus :)
☛ In 2009 Hydrocephalus became recognized around the Nation. It was voted in July that September from here on out be "Hydrocephalus Awareness Month"!!
☛ There was "The First Annual Gracie Classic" - A golf tournament raising funds for the Hydro Association
☛ "Walks" There were more "Hydrocephalus WALKS" around the Nation in 2009 than any other year! And the goal is to have AT LEAST One walk in EVERY state by 2010! Lets make it happen!!
☛ "Boozle the Hydro Bear" was introduced! He's available for purchase on the Hydrocephalus Association's Website, www.hydroassoc.org
He's just your average teddy bear, but he has a shunt! YOU can perform shunt surgery on him, learning for yourself, and showing others and/or your child HOW exactally shunt surgery is performed :) He's ADORABLE & I WILL be purchasing one of these for myself & Rowan to have :)
☛ I'm SURE it's happened here & there before, but Hydrocephalus was in the news in 2009! Heres the link: www.myfoxtwincities.com/dpp/health/In-Depth-Jumping-for-Jack-nov-10-2009
☛ AND AGAIN in local news! :)▬► www.hometownlife.com/article/20091213/LIFE/912130400/1103/NEWS10/Livonia%20woman%20wants%20to%20make%20hydrocephalus%20a%20household%20word
☛ Last but not least, FOR NOW that is, in 2009 was the "Founding Year" of the SouthWestern Pennsylvania Hydrocephalus Support Group ;D The website your reading RIGHT NOW began in September 2009 as well!
..I've found COUNTLESS times Hydrocephalus has made news in the media this year, and hopefully, in 2010 & years to come, Hydrocephalus will become a Household "term", like Cancer for instance, and people will stand up and SPEAK about their disorders and/or their family members' disorders w/ Hydrocephalus to increase awareness, because in the long run, the more awareness we stir-up, the better chance that we'll see a CURE someday sooner, rather than later. And ofcourse that would be the wish of ANYONE with Hydro OR a family member with it. I know personally I'd give just about ANYTHING to know that my daughter would be CURED, and not just "temporarily" fixed w/ the band-aid of a Shunt. While Shunts are GREAT, and THANK GOD FOR THEM - at the same time, a cure would ease the minds of SO many, including me.
Well, thats it for me today 【ツ】
I know there were SOOO many more GREAT things that happened this year in the world of "Hydrocepahlus", but I'd be here ALL NIGHT typing them, so there are a few for you to look at & think about, and just remember it's up to us to make any change! Spread the word, share your stories, and join support groups & "Walks" around the country in 2010 to support the cause! :)
God Bless All of you, thank you for reading & I'll be typing at ya again soon I'm sure!! 【ツ】
•*¨*•.¸¸♥ ¸¸.•*¨*•
Andrea
*SW PA & Surrounding Areas Hydrocephalus Organization!* A New Hydrocephalus Online Supprt Group inviting anyone 'n everyone in the SouthWestern / Western PA Areas to join! -Cerebral Palsy, Spina Bifida, any and all diseases that can cause, lead to, or are associated with Hydrocephalus.. <- YOU are ALL welcome to join us! ▅▆▇▆▇▇▆▅▄▄▂▁☼▁▂▃▄ Even if you are not in our SW Pa area, feel free to join & post YOUR story to support our area! :) We don't turn anyone away!
I LOVE this post & might use a bit of your idea if thats okay. Keep it up, you're an amazing advocate for Rowie & the Hydro community!
ReplyDeleteJenn
ReplyDeleteThanks for reading!
& Use whatever you want hun! :) & Thank u for the kind compliment! ;D
I feel the SAME way about you!!!
TTYS!
xoxoAJ
Thanks Nick :) If your interested in reading MORE about Hydrocephalus, I have my PERSONAL blog where I track my daughter Rowan's progress, milestones, & Struggles w/ Hydro, Cerebral Palsy, & Epilepsy.. It's at Http://andreajunelleb.wordpress.com/
ReplyDeletehope u come back again soon!
*hugs*
Andrea, Rowie, & Family