☆ 1st Post of 2010!! ☆

Happy New Year everyone!!

We made MAJOR progress in the world of "Hydrocephalus" & "Spreading the word" in 2009 - So NATURALLY everyone's goal would be to do EVEN MORE great things in 2010.

╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯
╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓

It starts with people sharing their stories.
The reason that half of the population has never even heard about Hydrocephalus is b/c of how "hush hush" getting out there & telling your (or your family members') stories..
I'll even admit, when I was 7 months pregnant and the Doctor's told my fiance' and I that our daughter would be born with Hydrocephalus, we had to have it 100% explained to us b/c we'd NEVER heard of it.. I mean, you can KIND OF figure that it has SOMETHING to do w/ EXTRA FLUID SOMEWHERE in the body b/c of the "Hydro" in the word - but other than that ??

╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯ ╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓

So also in 2009 a lot more people got out there & told their stories, creating awareness, etc. THATS another goal. DON'T be afraid to tell your story, we're all a family in the Hydrocephalus Community.. I've HONESTLY NEVER met a group of people that are THIS supportive and SO un-judgemental. All they want to do is HELP & be there for SUPPORT.

They inspired me SO much that I PERSONALLY wanted to begin a Support Group of my own in my area.. Which is what THIS site that your reading right now is devoted to.
BUT, as you can see, as of right now I only have FIVE followers.. ( ONE of those being ME LoL )
As you can see in the SideBar, I've made flyers & been posting them up in my area at ALL local Doctor's offices, I REALLY need to post them up all over the Neurology & Neurosurgery Departments of Children's Hospital of Pgh. LUCKILY, last week of January Rowan(my daughter) DOES have an appointment at Children's Hosp. to see her Neurologist. SO, HOPEFULLY I'll be allowed to post a few up there that day! Because our goal was to build up the people FOR the Support Group during these Winter / Holiday Months, and I KNOW it's still Winter, but we've passed the Holidays now officially, and I feel like I haven't made much progress..

I was hoping that in a year, maybe two, we'd even be able to build up enough people in the SouthWestern / Pittsburgh Pa Area to even have a "Walk". The Hydrocephalus Association's goal for 2010 is to have a "Walk" in all 50 states. Last year they had a Walk in my state of Pa - but it was on the COMPLETE other side of the state in Philadelphia, which is "by myself" a 7 hour ride.. But to drive it w/ Rowan, a 21 month old baby, you can EASILY add at least an hour or two onto that original 7 hours..So we'd have to like, get a hotel, spend the night & make a big thing of it.. Which just wouldn't be easy with Rowan. She, like most kids her age, has a hard time falling asleep anywhere but home. and she ALSO has a really tough time on long car rides..
*LONG STORY SHORT, I come up with this "Master Plan" that I'm going to try to arrange what they've got goin on out in Philly, over on THIS side of Pa in Pittsburgh.. I've just been unsuccessful so far.
So I'm HOPING HOPING HOPING that this blog-site (along with all of my flyers!) get "out" to the right people in my area so we can get this thing rolling! NOTHING would make me happier!

╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯ ╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓

So if your reading this & your NOT from my area - Spread the word to anyone you may know..? If you ARE from the SouthWestern Pa, Greensburg, Morgantown WV, Uniontown, Irwin, Janette, Pittsburgh, etc. ALLLL of those cities & the surrounding ones are included! Then contact me - leave a message on the Support Groups blog-site here, or visit my personal blog where I track my daughter's milestones, accomplishments, & struggles with Hydrocephalus, Cerebral Palsy, & Epilepsy, @ http://andreajunelleb.wordpress.com/
and you can leave a message there for me as well!

╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯ ╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓╰╯╭╮┗┛┏┓

The support group meetings we're planning will be MORE than just sitting around & sharing stories. While we WILL do that - we'll ALSO have Guest Speakers some meetings, from Doctors to Therapists, -► ANYONE knowledgable on Hydrocephalus. Also activities, meet & greets with family members, picnics, etc. And it's nothing you have to be "Married" to - I'd like to have a meeting once a month, or at LEAST once every OTHER month, and It would be on the SAME DAY of every month, which would be picked BY the support group & what works for everyones work / school / activity schedule.

So I'm waiting for YOU!! Contact me!❤(◕‿◕)❤

♡2010♡ ❂❂❂ ⒷⓁⒺⓈⓈⒾⓃⒼⓈ ⒶⓃⒹ ⒼⓄⓄⒹ ⒸⒽⒺⒺⓇ ❂❂❂ ♡2010♡

♥ ℓﻉﻻ٥ ♥
Andrea