Hi. My name is Taryn.I was diagnosed with Hydrocephalus when I was a newborn. I also have a aracnoid cyst on my brain stem. I've been looking for a support group for the past couple of years. I had 9 shunt revisions in 2005. I suffer from chronic headaches every day. I've never had any support and have been looking for some people who could understand what it's like to live with hydrocephalus. My email address is coolchic128@hotmail.com. I hope to hear from someone who understands what it's like to live with Hydrocephalus.
**Taryn, although I PERSONALLY don't have Hydrocephalus, my dear daughter does & since she's only 2yrs I can't imagine what she feels like ( headaches, etc ? ) But I'm here if you ever want or NEED to talk. UNFORTUNATELY there was a local support group meeting in April but it got cancelled last minute & I'm not quite sure why.. BUT I'll keep you posted via email if another gets scheduled! & Also I apologize for my MANY MONTHS that have gone by without a reply... I mentioned my 2yr old daughter, she has 7 therapies in a 5 day week, PLUS I also have an almost 8yr old son who I TRY to give equal attention to so I kinda got "away" from the computer in general for a while, but I'm working on getting back in the SWING of things - my apologies!
Hope to see you around on here & TTYS
xo
Andrea & family
No comments:
Post a Comment
Feel free to post your own "Personal Story" in the comment box and I'll copy and paste any "Stories" into a post for all to read so others can see that they are not alone. Thank you :)